Every
day, more than 100,000 Americans wait for an organ transplant that
could save their lives. Despite over a decade of reaching record donor
and transplant numbers in the United States each year, the need remains
high. August is National Multiethnic Donor Awareness Month, a time to
call attention to the improvement and innovation needed to meet the
needs of those waiting.
There are three aspects of donation where we can drive change:
trust,
technology and training. Increase trust in the system, improve
technology and expand training for the next generation of clinicians.
Through intentional work in these areas, we can expand access to
life-saving transplants for everyone.
Building public trust in organ donation
The success of organ donation depends on one thing above all:
public
trust. Families say yes to donation often as they grieve the loss of a
loved one. The decision to authorize donation must be rooted in
confidence that the system is empathetic, ethical, fair and accountable.
It’s important to keep in mind the following facts:
-
Medical professionals are trained to work their hardest to keep their
patients healthy and alive, no matter their organ donor status.
- Hospital staff and organ procurement specialists keep donor-patient safety and the donor family at the center of their work.
- Organ donation comes at no financial cost to the donor family.
-
The wealthy and famous do not get preference on the national transplant
waitlist. Wealth is not a factor. The computerized waitlist considers
factors such as medical urgency, geographic proximity to the donor and
organ compatibility.
Dispelling
myths like these helps instill trust not just for those considering
donor registration but for those waiting for a transplant. Every
patient, regardless of ZIP Code, sex, race or ethnicity, should know the
system strives to provide each of them an equal chance of receiving a
transplant based on medical urgency, time waiting, biological matching
and other factors that work to increase the chances of a successful
transplant.
Building
trust requires not only better informing the public but also building
transparent communication that emphasizes humanity at the center of the
donation process.
Needed technology improvements in the organ donation process
Technology
has undoubtedly revolutionized organ transplantation. We now have
tools, such as organ perfusion technology, which can keep donated
kidneys, hearts, lungs and livers viable for hours or days outside the
donor’s body. That means organs that once may have gone unused can now
save lives. In many cases, the technology can also improve the organ’s
function while on the perfusion machine.
Organ
Procurement Organizations like the one I work at, as a multicultural
outreach coordinator at New England Donor Services (NEDS), work closely
with innovators of such devices. These collaborations have allowed for
the creation, testing and deployment of devices that expand transplant
opportunities for organs that previously would have gone unused.
In
addition, the potential for an AI-driven matching system for the
transplant waitlist that can better predict which organs will do well in
which patients would be a valuable development. This would cut down on
the many hours spent finding a home for every recovered organ while at
the same time reducing complications and improving transplant outcomes.
Such AI tools are currently being developed to improve the efficacy and
effectiveness of organ allocation.
Training the next generation of transplant professionals
Organ
donation and transplantation are one of the most complex, high-stakes
areas of medicine. It requires not only technical skills but compassion
and resilience. Yet for many medical students, the field may remain an
afterthought and may not be introduced at all.
Expanding
the pipeline of trained transplant and donation professionals is needed
to maintain and expand our nation’s capacity for more transplants. At
NEDS, we recently celebrated the graduation of our inaugural class from
our Galen V. Henderson, MD Program. The program is an eight-week
immersive experience for medical students in New England to learn about
the role of organ donation and transplantation in health care, help
students better understand the full scope of the transplant journey and
learn about potential career paths in organ donation and
transplantation.
Increasing
trust, leveraging technology and training new donation and transplant
professionals are necessary, life-saving imperatives. While the U.S.
transplant system improves each year, with increasing donors and
transplants for 14 years in a row, the success can only continue if we
identify and confront roadblocks. By committing to improvement in these
three target areas, we can reach a place where every patient awaiting a
transplant has a chance at receiving the organ they need.
Menen Crawlle is a
Multicultural Community Outreach Coordinator of New England Donor
Services (NEDS), a leading non-profit organization that coordinates
organ and tissue donation across Massachusetts and New England.